April 2013 - Internet Resources Digest

Topic(s): 

Shared decision making

AIHA Internet Resources Digest

April 2013

Spotlight on: Shared decision making

Shared decision making (SDM) is an approach where clinicians and patients communicate together using the best available evidence when faced with the task of making decisions, where patients are supported to deliberate about the possible attributes and consequences of options, to arrive at informed preferences in making a determination about the best action and which respects patient autonomy, where this is desired, ethical and legal.

http://en.wikipedia.org/wiki/Shared_decision-making

International and National Projects

Patient Decision AidsPatient Decision Aids (Canada)

It is a part of the Ottawa Health Research Institute, affiliated with The Ottawa Hospital and The University of Ottawa.

The Patient Decision Aids research program was developed to help patients and their health practitioners make "tough" healthcare decisions. "Tough" healthcare decisions may have many options, uncertain outcomes or benefits and harms that people value differently. Patient decision aids are tools that help people become involved in decision making by providing information about the options and outcomes and by clarifying personal values. They are designed to complement, rather than replace, counseling from a health practitioner.

The web-site includes: A global inventory of available patient decision aids, Development and Implementation Toolkits, Ottawa Personal Decision Guide, and other resources.

http://decisionaid.ohri.ca


NHS Shared Decision Making (UK)NHS Shared Decision Making (UK)

The aim of the Right Care Shared Decision Making Programme is to embed Shared Decision Making in NHS care. Patient Decision Aids are specially designed information resources that help people make decisions about difficult healthcare options. Each Decision Aid is split in to five steps which guide you through the process of making this decision:

  • Step 1 (Introduction) - describing the health problem, treatment options and decisions to be made. Further, background information is also provided about the condition itself
  • Step 2 (Compare options) - accurate information on the similarities and differences between treatment options
  • Step 3 (My Views) - here you are asked for your personal likes and dislikes about the different treatments
  • Step 4 (My Trade-offs) - helping you to trade-off the advantages and disadvantages of each option
  • Step 5 (My Decision) - supporting you to choose an option that is best for you

During the process you will be able to create a print out which summarises the information you have read and your views about this decision. You can use this to help you talk about it more with your doctor, nurse, family, friend

http://sdm.rightcare.nhs.uk


AHRQ—Patient Decision Aids (US)​AHRQ—Patient Decision Aids (US)

These decision aids are designed for patients with certain conditions to help them think about what is important to them when talking with their clinician about treatment options. If you would like to learn when new decision aids are added to this page, you can join the e-mail list. If you have a web site or blog, you can share these decision aids with your visitors (by downloading the code for related buttons).

http://effectivehealthcare.ahrq.gov/index.cfm/tools-and-resources/patientdecision-aids/


Informed Medical Decisions FoundationInformed Medical Decisions Foundation

Informed Medical Decisions Foundation decision aids are intended to accomplish the following:

  • Frame the decision and the available options in a balanced, unbiased way;
  • Explain what is and is not known about the potential risks and benefits of each of the reasonable options, including the probability of key outcomes, based on the best available evidence.
  • Share with patients what the experience of the various choices might be, including what it would be like to experience some of the most frequent side effects or complications of the treatment options. Often this is done with the use of patient interviews.

http://informedmedicaldecisions.org/shared-decision-making-in-practice/decision-aids/


Shared Decision Making (SDM) Wiki

Established in 2011, the Shared Decision Making (SDM) Wiki provides the SDM community– providers, researchers and policy makers–with a platform to share, collaborate and advance shared decision making research and practices. Anyone with an interest in SDM is welcome to contribute to the Wiki.

http://sdmwiki.org/wiki/Main_Page


International Patient Decision Aids Standards (IPDAS)International Patient Decision Aids Standards (IPDAS)

Collaboration The International Patient Decision Aids Standards (IPDAS) collaboration consists of international researchers, practitioners and stakeholders working to establish an internationally-approved set of criteria for patient decision aid quality.

What is the purpose? To enhance the quality and effectiveness of patient decision aids by establishing a shared evidence-informed framework with a set of criteria for improving their content, development, implementation, and evaluation. These criteria are helpful to a wide variety of individuals and organizations that use and/or develop patient decision aids.

http://ipdas.ohri.ca


Mayo Clinic SDM National Resource Center Mayo Clinic SDM National Resource Center

The Shared Decision Making National Resource Center at Mayo Clinic promotes shared decision making through development, implementation and assessment of decision aid tools and SDM techniques. They seek to become leaders in shared decision making for patients with chronic conditions and cardiovascular diseases.

http://shareddecisions.mayoclinic.org


MAGIC ProgrammeMAGIC Programme

MAGIC stands for ‘making good decisions in collaboration’. A consortium of experts from Newcastle and Cardiff are putting their day-to-day efforts into running this programme. Phase 1 of the programme ran from from August 2010 until January 2012. The sites have now moved into Phase 2 of the programme which runs from May 2012 until the end of October 2013.

MAGIC is exploring how shared decision making can be implemented in routine medical practice. Through awareness campaigns, MAGIC is educating patients and providers about decision-support tools and the effectiveness of shared decision making. Phase 2 of the programme will focus on:

  • Leadership and Commissioning
  • Patient and Public Involvement
  • Education and Training
  • Clinical Engagement
  • Quality Metrics and Demonstrating Value.

http://www.health.org.uk/areas-of-work/programmes/shared-decision-making/the-programme/


Shared Decision Making Resource Centre Shared Decision Making Resource Centre

The Health Foundation’s resource center provides individuals and care teams with materials to help implement shared decision making into everyday practice. These resources include materials that were developed by primary and acute care teams in Cardiff and Newcastle as part of the Health Foundation's MAGIC programme and national and international evidence, papers and practical resources (that can be used both in consultations and at home by patients, their families and carers).

http://shareddecisionmaking.health.org.uk


JOURNALS

Medical Decision Making Medical Decision Making

Medical Decision Making (MDM) is a peer-reviewed bi-monthly journal offering rigorous and systematic approaches to decision making that are designed to improve the health and clinical care of individuals and to assist with health policy development. MDM presents theoretical, statistical, and modeling techniques and methods from disciplines including decision psychology, health economics, clinical epidemiology, and evidence synthesis. Includes articles in shared decision making

http://mdm.sagepub.com


Patient Education and Counseling Patient Education and Counseling

Official journal of EACH, the European Association for Communication in Healthcare and AACH, the American Academy on Communication in Healthcare.

Patient Education and Counseling is an interdisciplinary, international journal for patient education and health promotion researchers, managers, physicians, nurses and other health care providers.

The journal seeks to explore and elucidate educational, counseling and communication models in health care. Its aim is to provide a forum for fundamental as well as applied research, and to promote the study of the delivery of patient education, counseling, and health promotion services, including training models and organizational issues in improving communication between providers and patients.

http://www.journals.elsevier.com/patienteducation-and-counseling/


The Journal of Clinical Ethics The Journal of Clinical Ethics

The Journal of Clinical Ethics is written for physicians, nurses, attorneys, clergy, ethicists, and others whose decisions directly affect patients. It is an American Society of Bioethics and Humanities partner journal. JCE is a double-blinded, peer-reviewed journal

http://www.clinicalethics.com


Shared decision making articles from the BMJShared decision making articles from the BMJ

A collection of articles from BMJ. You can also subscribe to RSS feed to receive alerts about new articles on that topic.

http://www.bmj.com/bmj-series/shareddecision-making


AIHA Internet Resources Digest Forthcoming Topics [Provisional]

  • Telemedicine
  • Open Access Initiatives
  • Resources on Pediatrics
  • Patient Information Services

AIHA Related Resources

Health Resources Digest, December 2012 - Resources on Complimentary and Alternative Medicine
http://www.healthconnect-intl.org/IRD_dec12.html


About the AIHA Internet Resources Digest

The Internet Resources Digest — previously called the Health Resources Digest — is distributed free of charge as a service of the American International Health Alliance’s Learning Resources Project thanks to the generous support of the American people through the US President’s Emergency Plan for AIDS Relief (PEPFAR). The Learning Resources Project is implemented through AIHA’s HIV/AIDS Twinning Center Program, which is funded through a cooperative agreement with the US Department of Health and Human Services, Health Resources and Services Administration (HRSA).

The Internet Resources Digest is compiled by Irina Ibraghimova, PhD, Library and Information Management Specialist, HealthConnect International (healthconnect-intl.org). The contents are the responsibility of AIHA and do not necessarily reflect the views of PEPFAR, HRSA, or the United States Government. If you have a suggestion for a Digest topic, or would like to contribute information about Internet resources, please contact ibra[at]zadar.net.

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